Monday, May 10, 2010

My Fourth Year Participating, My First as a Survivor

This entry was written by Denise Portner of Elkins Park, PA:

This May will be the fourth year I’m attending the Yoga Unites for LBBC event, and I always love the feeling of camaraderie, the gentle early morning sun on our faces, the quiet of a group of hundreds during yoga together. The Healthy Living Expo is fun, the food is fresh and the coffee is delicious. But this year will be different. It will be the first one in which I am a survivor. And the lesson I’ve learned is that any one of us can go from supporter to survivor. But with the help of loved ones and an organization like LBBC, we can make it.

I had gotten involved with LBBC through my work in public relations, connecting one of my client companies to LBBC as a sponsor. The CEO has since joined LBBC’s board of directors, as has one of my law firm clients. Both are men whose wives, sisters and other relatives have had breast cancer, and they want to be involved with an organization that touches women so profoundly, through individual support, as well as the highest level of educational programming and seminars around. That’s what hooked me too.

From the start, I was impressed with how easy it was to work with Jean, Elyse, and all the staff at LBBC and how quickly they felt like friends. In the meantime, I was on my own personal journey, since my mother and aunt had both had breast cancer. After my aunt was treated, she and my mother underwent genetic testing and learned they carried the BRCA 2 mutation. My sister and I were then tested, and I learned I was BRCA 2 positive as well. In the summer of 2008, after visiting two local Family Risk Assessment centers and receiving top-notch counseling, I was giving thought as to whether to take prophylactic measures to prevent breast and ovarian cancer. I was in my mid-40s, and my mother and aunt had been diagnosed at age 60. I assumed I had time.

Last May, on the steps of the Philadelphia Museum of Art, I was a participant in Yoga Unites for Living Beyond Breast Cancer. In our tradition, I shared the morning with my friend Risa, her daughter and mother, who is a survivor. During the program, I listened to the stories and prayed for the women who had gone through so much, and was glad to contribute to a great cause. Later in the month, I attended my 25th college reunion in New England, spent the weekend with wonderful friends, and had a great time.

But then in June, I had an MRI rather than a mammogram, because of my genetic status. It showed an area of concern that I subsequently had biopsied, and all of a sudden, and forever, I became a woman who had breast cancer.

In the year since, I have had surgery, reconstruction, chemotherapy and radiation therapy. My care at Fox Chase Cancer Center has been top notch, and thank heavens, my prognosis is good. My family and friends have been there for me, and so has LBBC. The newsletters and teleconferences are suddenly extremely relevant – as if someone is reading my mind and addressing my concerns. Jean and Elyse have reached out to me, shared their experience, and put me in touch with experts for second opinions that are leaders in the field. The silver lining during this challenging year has been the expression of love and support I have received from my family, friends and colleagues, and the time I have been able to spend with them. I realize not everyone is as fortunate. Not everyone has the network I had, the insurance I had, the access to information and the ability to process it. And alas, not everyone is married to a physician who also cooks.

So this year, I appealed to my circle to help raise funds to support women who face this diagnosis with fewer resources than I had, because getting through cancer treatment is hard enough. This year, when we gather on the steps of the majestic Philadelphia Museum of Art, overlooking our beautiful city in the Sunday morning hours, my perspective will be very different. My sense of connection to LBBC and its supporters will be stronger. My compassion for those who suffer and worry and persevere, will be top of mind. And my gratitude for having reached this day, overwhelming.

It's not too late to part-take in this year's event! Sign up now at www.yoga4livingbeyondbreastcancer.org.

Thursday, May 6, 2010

A Karma Project in Honor of a Loved One

Lisa O’Rear thought that participating in this year’s 8th Annual Yoga Unites for Living Beyond Breast Cancer was the perfect way to complete her “Karma Project.” She has only been practicing yoga for a year and is now on her way to becoming a yoga instructor. One of the requirements for her yoga-teaching course is to complete a “Karma Project,” which brings yoga into the community by volunteering.

“Breast cancer is a huge deal. It runs in my family,” said Lisa. On April 23, 2010, Lisa lost her cousin Micheline Camire Bedard to breast cancer. She had been battling the disease for two years. “When Micheline was diagnosed, it brought back painful memories for our family. “Our aunt was diagnosed with breast cancer when she was 49. Micheline was the same age when she was diagnosed,” Lisa wrote in an email.

Yoga has been a fundamental experience in Lisa’s life. She credits yoga and its benefits to the healing effects that it has had on her personal life. “Yoga teaches you about acceptance; about being content with what is and not what could be,” said Lisa.

Over 200,000 women will be affected by breast cancer this year. However, a pilot study revealed that a brief yoga class would be beneficial for combating side effects from cancer treatment. Lisa is familiar with the many aspects associated with yoga. “It allows women to be physically involved. You can sit in a chair and do yoga.  It makes them [women] feel like they’re doing something. It gives them hope,” she said.

Lisa, 33, has done research about breast cancer gene testing. She believes that the more you learn about breast cancer, the more you realize that it could in fact be you. She is afraid of breast cancer and disappointed that people don’t become involved enough until it affects them. “Motivation comes from within. How could you not be a part of something that affects so many people?”

“Think about all the women you work with; about all the women you come into contact with in your daily life.” Many of those women will be diagnosed with breast cancer,” said Lisa.

Yoga Unites for LBBC will take place on the steps of the Philadelphia Art Museum on Sunday, May 16. Lisa’s team “MC Yoga Love” has raised $1,260 for LBBC education and support programs.

“You don’t always have the opportunity to do things like this in life. Micheline was a humble person. She was much more concerned about other people than herself. She was an inspiration,” she ends.






Would you like to share your story about participating in Yoga Unites for Living Beyond Breast Cancer? Email yarissa@lbbc.org.

Friday, April 23, 2010

Yoga Unites

This post was written by Melissa from Ohio: 

This is certainly true. It unites us as a community and it re-unites us with ourselves. If we just take the time to focus on our breathing, we can become present in the moment and live now instead of yesterday or tomorrow.  There are plenty of things to worry about, but we are better capable of dealing with them when we slow down and breathe. There are various forms of yoga, and everyone can find something they are physically capable of doing and something they can enjoy. 

I was involved in a study at The Ohio State University that set out to look at the role of yoga and stress in breast cancer survivors. The study is ongoing, so the data is not published yet, but we were shown very gentle movements and breathing exercises that were calming. My instructor was a peaceful, beautiful lady who truly loves yoga. Often that is the case with yoga instructors- they want to share the gift of yoga because it is such a great experience. We just need to let go and relax as students. Don't look at your neighbor's pose- focus on your breathing and relax into the pose.  Let the day's worries melt away....

How do you feel about yoga? Has it help you cope? Share your thoughts with us, either here on this blog, on our Facebook page!

Wednesday, April 21, 2010

Team Spirit!

This post was written by Sydney Licht, team captain of Team Spirit:

Yoga Unites for LBBC is one of my favorite days of the year. It is an experience that I have looked forward to since I was in eighth grade. I first formed a team when I was thirteen, completely unaware of how much of an impact Yoga Unites for LBBC would have on me. I was so impressed with the intimacy and uniqueness of the event- it was unlike any fundraiser that I had ever attended. Over the years my team, Team Spirit, has grown, and my friends and family have helped me to organize ice cream socials and bracelet sales in order to raise money for a genuinely awesome organization. This year with survivors among us, we have a very high fundraising goal of $3,000. We have arranged a fundraiser at Rita’s Water Ice on Butler Pike in Ambler on April 28th, 2010 from 4-9PM and plan to have raffle baskets filled with items such as yoga class cards, and gift certificates! I am incredibly glad to be involved with such a fantastic organization that I know has supported people close to me battling breast cancer. I am really looking forward to this year’s Yoga Unites for LBBC and hope that we can all help LBBC reach their goal to raise $200,000 in honor of the 200,000 women who will be diagnosed with breast cancer this year! See you there!


Like Sydney, you too can participate and help LBBC fulfill its mission of empowering all women affected by breast cancer to live as long as possible with the best quality of life. Join us on May 16 and participate.connect.support! Visit www.yoga4livingbeyondbreastcancer.org to register!

Monday, April 19, 2010

Pink Kitchen

This entry was written by Lisa Grey, a first time participant:

My name is Lisa and this year I decided to participate in Yoga Unites for LBBC and form a team – Pink Kitchen -- for a few reasons:

I am a two-year survivor. I was born in Philadelphia. Most of my family - particularly those who supported me through the worst of my treatment - still lives in Philly. So there is something very nostalgic for me in supporting an event that takes place on the steps of the Art Museum.


I am also a huge fan of yoga. There is no other activity that can combine exercise, relaxation, and personal achievement in quite the same intensity as yoga can. I began practicing yoga two years before my diagnosis. Little did I know then that yoga would be such a critical part of getting through treatment, and then rejoining the non-cancer world. It was bittersweet for me - between the chemotherapy and all the surgeries I've had, I've lost so much of my range-of-motion and energy. Yet I've learned that yoga is a safe place - no one cares what you're doing, or how you're doing it. No one cares what level you'd reached before cancer struck. You're just there in the moment of each pose, feeling alive.


But the best reason I have for supporting Yoga Unites for LBBC is that LBBC helped me this year. For the first time, I attended the Annual Conference for Young Women Affected by Breast Cancer. I really felt like I needed to get away from my role as post-cancer Superwoman and surround myself with women who understood what it's like to balance cancer and daily life expectations. The workshops gave me a chance to empower myself through knowledge, while the social events let me leave my cancer label behind for awhile and just be 'Lisa'!


So here I am! I want to raise money so others can experience the conferences and programs like I did. I am earning my PhD in Health Psychology, and my dissertation research pertains to breast cancer and healthy living. I’m creating a cookbook series titled Pink Kitchen to make nutrition easy on survivors (and really, anyone) with a lack of time and energy....even if they think they have no knack for cooking. Next year, I hope to have a table at the event. Can't wait!




Why are you participating in this year's event? Comment here or on our Facebook page!

Tuesday, March 30, 2010

Yoga: Not Just Poses

This entry was written by Yoga Unites for Living Beyond Breast Cancer instructor, Jennifer Schelter:



So you’re not sure about this yoga thing. Maybe you’re intimidated by the poses. Or maybe you’re unsure about whether the exercise is really helpful or not. Regardless of where you’re coming from, there’s probably a lot you don’t know about yoga. Bottom line: yoga is not just about poses. There are many physical and emotional benefits to be gained from giving it a try.


Practicing yoga is like being an architect of your body. You connect the dots between your mind and body, while cultivating well-being and happiness.


In the last ten years, yoga has become a great way to “get fit”, flexible, balanced and toned. We’re motivated by celebrity beauty and glamour and we fear aging and death like the plague.Those would be reasons enough for anyone to leap into yoga and seek the fountain of youth.


But what‘s really happening when you’re doing yoga?


The deeper benefits, whether you feel them or not in the beginning, far surpass asana (poses).


You can easily get physically injured if yoga becomes yet another thing you have to “win.” The mind is really what we are all up against. And the center of yoga is your relationship to perception and your mind.


How do you slow down the mind long enough to feel in sync with your body?


The mindfulness of a yoga practice acknowledges that your body, heart and mind are like a river. How are you going to relate to this river that is constantly in flux? What awareness do you need in order to cherish, love and forgive your body, your self, others and the world?


Yoga provides the basic structure for four important daily life practices:


1. Inspiration: Inspiration is the foundation of change and growth. It helps you understand and expand your ever-evolving self.

2. Attention: What you focus your attention on impacts your mind. Feed the mind thoughts of victimization and fear and that’s what you will see. Feed the mind thoughts of trust and love and that’s what you will see.

3. Intention: Growth and transformation can only be fulfilled if you are willing to allow new thought and action. These new thoughts and actions can help you create new experiences that result in improved health, well-being and love.

4. Choice: Choice is the key ingredient to well-being because, as we all know, excuses are plentiful and an easy way out. Choosing to commit to your intentions opens up new worlds of opportunity and friendships.


These past eight years of Yoga Unites for Living Beyond Breast Cancer have been an incredible testament to the power of inspiration, attention, intention and choice, not only from women affected by breast cancer, but from all the participants who join together to meditate, acknowledge life as it is and celebrate unstoppable optimism.


Regardless of whether you’ve tried yoga or not, come join us on the steps of the Art Museum May 16th!


Interact with other participants by visiting our Facebook page and following us on Twitter!

Friday, March 26, 2010

Fundraising for Dummies

So you've registered for Yoga Unites for Living Beyond Breast Cancer and formed a team. Now you're not sure what to do next.

Fundraising can be a daunting thing, especially if you've never done it before. But there are hundreds of creative ways to fundraise that involve no prior training or skill. We're bringing some of these ideas to you in the hopes that you'll use them to help us raise $200,000 for the nearly 200,000 women that will be diagnosed with breast cancer this year.

1. Hold an event at a local restaurant.
Chances are you frequent a local restaurant regularly. Use this to your advantage and ask them to hold an event to benefit your fundraising team. Or ask them to donate a portion of the sale from a certain item to your team. Most restaurants are happy to help a good cause, especially if it will draw more people to them. Remember Jenna, our program coordinator? She raised over $500 in one evening by hosting an open bar night. Everyone paid $25 to get in and $10 of that went straight to Jenna's team, The Rack Pack.

2. Bag it up.
Let's face it: grocery stores are short-staffed these days. Most of us bag our own groceries, which takes extra time and is an added annoyance to most customers. So why not lend your services for the day? Find your local grocery store and offer to bag for a day (get your whole team involved). Leave tip jars at the registers for customers. Make sure to advertise this event beforehand as many customers will make sure to shop that day.

3. Embrace community organizations.
Visit your church, synagogue, fitness center or yoga studio and see what they can do to help. Maybe you can hold a Saturday morning pancake breakfast at your church and charge people $2 for a plate. Or maybe your fitness center or studio will hold a special, donations-only class to raise money for your team.

4. Use the kids.
Even if you're not a parent, you can still utilize local schools. Some schools will have a dress down day, where kids can pay $1 to wear jeans.

5. If you're good at something, sell it.
Everyone is good at something. If you like painting on the side, consider selling your paintings for a donation. If you like to make jewelry, sell it. If you're an organizer, offer to help someone organize their home in return for a donation. One of our supporters, Judy Herman, loves making chocolate chip banana cakes. Judy spent six days a week baking hundreds of cakes and raised over $5,000 for Living Beyond Breast Cancer. All she did was ask for a $10 donation for each cake.

Our website has lot's of other fundraising tips and tools for you to check out. The key is to look around you. Everyone is involved in some sort of group or organization, whether it be your work, volunteer organization, fitness center, book club, etc. Use these groups to brainstorm ways to raise money in the community.

Last but not least, ask for money. That form of fundraising is just as effective as ever. Write an email (or letter) to people you think may be interested in getting involved or making a donation. Personal stories always tug at people's hearts. Don't underestimate the impact of simply asking for help.

Do you have fundraising ideas of your own? Share them with others by becoming a fan of YU4LBBC on Facebook and following us on Twitter!